Retinitis pigmentosa usually starts in childhood. But exactly when it starts and how quickly it gets worse varies from person to person. Most people with RP lose much of their sight by early adulthood. Then by age 40, they are often legally blind.

What age does retinitis pigmentosa start?

RP is typically diagnosed in young adulthood, but the age of onset may range from early childhood to the mid 30s to 50s. Photoreceptor degeneration has been detected as early as age of six years even in patients who remain asymptomatic until young adulthood.

How long does retinitis pigmentosa progress?

It is known that some patients with retinitis pigmentosa become virtually blind by age 30 while others retain useful vision until age 80 or beyond. Considerable variability can exist in the severity of disease at a given age even among patients within the same family.