Neurofibromatosis Type 1 (NF1) In most cases, symptoms of NF1 are relatively mild, allowing patients to live normal and productive lives. However, the disorder can also be debilitating and, in some cases, life-threatening.

Does NF1 get worse with age?

Typically, adults with NF1 will develop more neurofibromas over time. They may grow for a period of time and then stop growing. In addition, they may change in shape or color as they grow.

Does neurofibromatosis shorten your life?

People with NF have an increased chance of developing severe tumors. In rare cases, these can shorten a person’s lifespan.