Currently, there is no cure for FOP. Courses of high-dose corticosteroids at the start of a flare-up can reduce some of the symptoms of the condition.

How long can you live with FOP?

Some people go months or even years without a flare-up. FOP can become severely disabling. Most people with FOP will need a wheelchair by the time they reach their late 20s. The median lifespan for people with FOP is 40 years .

Will FOP get worse does it ever stop or go away?

Does it ever stop or just go away? Unfortunately, FOP does not improve over time. The “P” in FOP stands for “Progressiva”. That means that FOP will progress, or get worse, as a person ages.