Symptoms of FOP include: malformations of the big toe. spontaneous flare-ups of inflammation or soft tissue swelling. increased flare-ups after injury, viral illness, or immunizations.

How common is FOP?

FOP is a very rare inherited connective tissue disorder that was first identified in the 18th century. Of an estimated 4000 affected individuals worldwide, there are approximately 900 known patients.

Are you born with FOP?

As FOP is part of a person's genetic make-up, people with FOP are born with the condition, even though the extra bone may not have appeared at birth. So people with FOP will not outgrow the condition.